At clinic they always check your lung function and weight before seeing the docs. I did the usual blowing into the machine and OH MY GOD!!!! It was an amazing blow!! I refused to believe this machine was telling me the truth so did another blow and it was near enough the same. I said to the nurse that was helping me that it has been years since i blew anything like that and I just don't believe the machine it right. So the nurse went and got another machine and I did another blow and to my amazement and confusion it was near enough the same!!
It took a long time for it to sink in but while we were sat there we looked over my old charts to see when my last lung function was when I got it to that and we found it as far back as December 2007!!!! WOWEEEE lol! After struggling to breath for weeks and going there to ask for help I couldn't believe this was real.
I am so VERY proud of myself as the reson I believe this happened was due to me doing all of my nebs, physio and colomycin religiously. It bloody works I tell you lol! All the physio's, nurses and doctors laugh when I say treatment works as they say they have been trying to tell me for who knows how many years! But I had to do it all off my own back. It was no good anyone telling me to do my treatment as I never listened.
So I left hospital feeling ontop of the world but still slightly concerned that I was breathless and there was nothing much I could do.
It's amazing what power of the mind is and how it works as I swear miraculously overnight I stopped being breathless! It's no joke I swear I haven't been breathless since that day and thats nearly a week ago..... Just being in a more positive state of mind helps your body so much its unreal. It's a shame I can't be this positive all the time but hey I'm only human....
So on the Tuesday was the day I went to hospital and on the Wednesday I started coughing up some darker greener stickier stuff whilst doing physio. I didn't really think much of it as I was just greatful to be breathing better. On Friday me, my Mum and sister Lindsey travelled down to my cousin Jodie's wedding in Newquay. On the morning we went I woke up and was coughing up blood. It was more than my usual amount which is usually just streaks through my sputum. But this was blood surrounding the sputum and it kept happening for about 2 hours everytime I coughed anything up before I left. I still wanted to go to the wedding so I drove down there. It was absolutely beautiful!! The hotel was set on the hill right on the sea :o) when you looked out of the windows it looked like we were floating on the sea, it was just stunning! I knew it would be a long day but my Mum was meant to be driving home so I didn't have to but it ended up me driving home which we left at about 11pm. I was very naughty and got home in 2.5 hours which I'm told is pretty good going lol oooops naughty Kimmy ;op.....
I woke up the next day at 7 on the dot as usual since I have been pregnant and needless to say I was exhausted!!! I coughed and spat out my sputum but the problem was there was more blood than sputum and it worried me quite alot. My chest had been aching since the previous day and this didn't look good. There was no one I could phone as the docs don't work weekends so it was a case of if it carried on going into hospital through A&E or seeing how it was through the day. So I did my nebs as your not meant to do hard physio when coughing up blood as you can make it worse. As I did my nebs I coughed up sputum with just some streaks through it which was reassuring. After that I haven't had any blood at all but my sputum is very very thick and dark which indicates infection and also chest is still really aching and painful at times.
I called the CF nurses for some advice and they said if I cough up anymore blood to get up there straight away and if my sputum gets worse then to go up there. To be honest I'm better off getting myself sorted now than waiting and maybe getting really poorly.
So in 1 week I have gone from having the best lung function in 3.5 years to coughing up blood and needing to go in for IV's again. Can't say my life isn't eventful lol!
So I will phone hospital in the morning and see if they have a bed available and yet again I have to leave my 2 fave people at home and go up there alone booo :o( oh well I need to get myself sorted. I just hate coming home and Livvy is really strange with me for days. I don't know if I'm looking forward to her being old enough that I can explain things to her or whether its easier as she doesn't know too much? Either way It's bloody horrible for me.
This time though is slightly different as my baby boy is always making himself known and I will feel like a have another part of the family right there with me :o) He is kicking as I write this as if in agreement with his Mommy hehehe! Xxxx
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