Tuesday, 15 April 2014

The Very Best Medicine?

Paracetamol, codeine, morphine? NO!

The very best painkiller and medicine is the love for my children.

2 ops in a matter of weeks and both times as soon as I wake up I fight the pain and tiredness and all I think about is getting home to my babies.

As I was being put to sleep the 2nd time for my kidney stint the same guy that I saw in theatre when I had my port fitted said sweet dreams Kimberley, what will you dream about this time? Barbados? My answer was "no! Just going to dream about my 2 babies cos that's the best thing".

I am back on the ward feeling quite uncomfortable but that's ok. Just going to focus on getting back home ASAP!

Xx

Sent from my iPhone

Thursday, 3 April 2014

My Vascuport

Apparently I hold the record for the most Vascuports at Heartlands CF Unit! Not something im proud of but it does slightly amuse me. Mum said my first one was put in when I was around 5 years old so really it's not too bad.

My 6th 'port' was put in about 5 weeks after Livvy was born. It was difficult to be away from my new baby and for Chris I dread to think how he felt having a young baby with me an hour away in hospital! Night feeds, nappies and an ill wife but he managed and I think I spent about a week in hospital at that time.

In December 2013 the hospital did a line o gram where they inject a special dye into the port and x ray it at the same time so they can see if and where it's leaking. They confirmed there was a leak of some kind. So that port lasted 4 years near enough exactly. The line blocked so I couldn't use it and it was back to lovely venflons in the arms or hands. They did suggest my legs and feet at one point and I said no way as I still remember what that felt like!! I, like many of my friends have to have about 3 or 4 attempts to get a few mls of blood as our vains are so bad due to them being have been used to death over the years. So right now I look like a pin cushion but the bruises are gradually going :)

I went into hospital 5 days before the operation to have some antibiotics so my lungs were in the best condition. I felt quite well and didn't really feel fazed by the op too much. The plan was to take the port and line out of the right side of my chest and go into the left side. I went down to theatre early in the morning which was great as no hanging around to get nervous. I took off my hand print necklace that Chris and the kids got me for Xmas which I hadn't taken off once and put it in the safe in my hossy room. Think I gave it a little kiss on the sly too ;) Then I was wheeled down to theatre knocked out and the next thing I know I woke up in recovery with pain only one side! Mr Gannon had managed to unblock the line and just replace the port so I was really pleased with that. Everything had gone well and I went back up to my room where Chris was waiting for me.

Within an hour or so I had got out of the theatre gown and into a nice loose top (with a bit of help from Chris) and munched a maccys lol. Not bad really. I went from strength to strength and as we had a new sofa delivered the day before and I missed the kids and home like crazy I managed to make it home just over 24 hours after having the op.

I told Chris I wasn't coming home yet to try and surprise him but when dad pulled up outside my house and I got out of the car I heard a loud "Oi!!!". Chris had been to the shop and caught me boooo!!

I was great to be home but to sink into a new sofa with the family was the perfect welcome home.

I had a bit of a worry when I had my dressings changed a week later as a few hours later my port started to bleed. I was so worried it would get infected but the next day I went to hospital and the cf nurses took the needle out which revealed a little cut next to the needle where something had been rubbing on me. Thankfully it's not bleeding anymore and it's healing really nicely.

Even though the operation didn't take a toll on my health my lung function has been on a gradual decline. Ivs don't really bring it up much so I have decided to go back to the gym. I go for the first time tomorrow after about a year and a half of not going. I'm nervous and worried as I cough whilst washing up at the moment but I will start slowly and see how I get on.

It's time to start telling myself it's onwards and upwards again and give myself a big kick up the arse! I know I have the determination and my lungs have seen me through nearly 31 years, 2 children and ALOT of stuff in between that so I know they can work with me and I'm hoping to reach a target of between 55 and 60% right now it's stuck around 46%. 10% doesn't sound like a lot but trust me it's going to take all my determination and I know I can do it. I have 2 amazing kids that make it all worth it.

Hope everyone reading this is well. Sending love to all xxxxx

Sent from my iPhone

My 7th Vascuport Journey!

Thursday, 27 March 2014

Apparently Everyone is Putting Up Pictures of Themselves with No Make Up On

So thought I would join in. This is me chilling on my new sofa 48 hours after having my operation. Bit scary but not terrible lol